The ice bucket challenge was more than a social media craze

The ice bucket challenge was more than a social media craze

In 2014, people across the world took the chilly plunge in the viral Ice Bucket Challenge, raising over $220 million to help fund research for amyotrophic lateral sclerosis (ALS). Now, researchers have found an experimental treatment that may help slow the progression of ALS, also known as Lou Gehrig’s disease, thanks in part to the money raised by the challenge.

A recent study published in The New England Journal of Medicine reported that participants given a two-drug combination experienced a slower progression of disease than participants taking a placebo. This included retaining some physical functions longer, like speaking, swallowing and walking.

“ALS is a highly progressive neurodegenerative disease with no cure and little treatment options,” explains Dr. Mhd Kher Heder, a neurologist at Aurora Medical Center in Summit. “Any research showing a potential way for patients to retain their ability to do things like walk and talk is valuable and encouraging.”

The six-month study used the Revised ALS Functional Rating Scale to measure outcomes. The 48-point scale measures patients’ abilities to do daily activities like walking and feeding themselves. Results showed that patients who took the drug lost fewer points over time in comparison to those who took the placebo.

According to the ALS Association, roughly 20,000 people in the United States currently have ALS, with most between the ages of 40 and 70. Symptoms include the progressive loss of muscle control and ability to speak, swallow, grasp objects, walk and breathe. The average life expectancy is two to five years.

“The difficulty with diagnosing ALS is that it is typically done by ruling out other diseases, which can take a very long time,” Dr. Heder says. “Unfortunately, there are currently only four drugs approved by the FDA to treat ALS and no cure.”

This is the first clinical trial supported by funds from the Ice Bucket Challenge to publish results. A number of other treatments are currently being tested with results expected soon.

Although there is still no cure for ALS, Dr. Heder says the new findings are promising.

“This is a step in the right direction,” says Dr. Heder. “The Ice Bucket Challenge greatly increased awareness for the disease and now we’re starting to see the results of the research that was made possible in part by the challenge.”

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  1. Mrs Patricia Whittle September 13, 2022 at 8:11 am · Reply

    My mum is 83 and had great difficulty speaking and swallowing much of anything. Food was getting trapped in her throat and blocking her air way was happening more often. she battled for each breath. The riluzole did very little to help her. The medical team did even less. Her decline was rapid and devastating. The psychological support from the medical centre was non-existent and if it were not for the sensitive care and attention of our primary physician, there she would have died. There has been little if any progress in finding a cure or reliable treatment. Acupuncture eased her anxiety a bit. we taught she gonna lose the battle, we all did lose faith, but today she is very healthy after using treatment from Health Herbs Clinic, this tincture was sent to us by a friend of mine who also has A dying diagnosed (PLS) she explained how this Treatment works and reversed her PLS. I was so desperate to try, Today am so happy my mom is back to her feet and It has been a complete turnaround with her speech, she no longer needs the feeding tube to feed, the treatment is a miracle. She recovered significantly!

  2. My husband who had been diagnosed with Bulbar ALS disease for 2 years at the age of 63 had all his symptoms reversed with Ayurveda medicine from naturalherbscentre. com after undergoing their ALS/MND natural protocol, he no longer requires a feeding tube. God Bless all Lou Gehrig’s disease Caregivers. Stay Strong, take small moments throughout the day to thank yourself, to love your self, and pray to whatever faith, star, spiritual force you believe in and ask for strength. I can personally vouch for these remedy but you would probably need to decide what works best for you.

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Carla Basiliere

Carla Basiliere, health enews contributor, is a seasoned communications professional with over 15 years of experience in the health care industry. Carla has a BS degree in Mass Communications from the University of Minnesota Mankato. In her free time, Carla enjoys spending time outdoors with family and friends.